Friday, November 14, 2008

Living with a child who has FAS

I rarely touch on such a private and very personal matter-especially to the public. I'm reaching out of my comfort zone to share a little of how this has affected my life and the life of my child.

When I first found out that my child had FAS I was overcome with a sense of sadness, hopelessness and loneliness. Next I was outraged with myself for such thoughtless and reckless behavior while being pregnant. Naturally, I didn't know I was pregnant, so I needed to let go of all the shame and useless anger.

I instantly became an advocate for my child. I was completely (and continue to be) caught off guard by all the obstacles and challenges we were to face. The triumphs and victories have come, but we have definitely fought our battles.

My child has been in speech therapy and behavioral therapy for almost 4 years now. I have worked with wonderful, educated and loving individuals who have guided us both down a wonderful journey. As I look back, we would not be where we are today without them.

My child is very special. A heart of gold, a loving nature, full of beautiful smiles and TONS of energy. My child doesn't realize that he/she is "different" and hasn't felt the hurt that I feel when others (strangers) say things about him/her out of ignorance or intolerance. I pray everyday that this will always be the case; that my child will never feel contempt or hate for others because of how people sometimes treat one another, especially someone they view as "different" or "less-than human".

I will not begin to say this has been a walk in the park and I have often found myself wondering and asking God "why me". I guess the answer is "why not me?"

I'm not a great writer, so bear with me any mistakes you may find here. I also understand that a few may judge me, a fear of mine I deal with on a daily basis. However, only God is my judge and I will do the best I can for my child to accomplish what I know and believe he/she is capable of!

Until next time,

Bye

No comments: